Experiencing Childhood Cancer: A Journey Through Shadows

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By Hermann Somchai Quint

Introduction


Childhood - a time of innocence, laughter, and boundless curiosity. Yet, what happens when this idyllic landscape is infiltrated by shadows? Childhood cancer, a cruel intruder, shatters innocence and leaves scars deeper than any playground wound.

In this article, I will share firsthand experiences with childhood cancer and explore why its brutality remains unfathomable to those who haven't walked this difficult path.

The Silent Onset

Childhood cancer creeps into existence, often masked by seemingly trivial symptoms. Headaches, persistent pain, unexplained lumps - these are some of the early whispers of an unwelcome guest. Unlike adult cancers with known risk factors, childhood cancers often defy explanation. Genetic mutations play their mysterious game, and cells rebel against their intended purpose.

The Battle Unseen

Imagine a child’s body as a battlefield. Cells, once allies, turn into traitors. Leukemias, brain cancers, lymphomas - they wage war within. Yet, these battles remain hidden. Childhood cancers lack the telltale signs that adults face - no smoker's cough, no sun-damaged skin. Instead, they masquerade as common ailments, delaying diagnosis and critical treatment.

The Cost of Silence

In high-income countries, a glimmer of hope exists. Comprehensive services, skilled doctors, and accessible treatments raise survival rates above 80%. However, in low- and middle-income countries (LMICs), silence amplifies the suffering. Less than 30% of children survive. Why? The lack of early diagnosis, inaccessible treatment options, inadequate healthcare systems, and the harsh side effects of treatment all contribute. Silence steals lives.

The Unseen Heroes

Behind the scenes, parents become warriors. They navigate hospital corridors, decipher medical jargon, and hold fragile hands. Their tears fall silently, absorbed by hospital pillows. Siblings become secret allies, masking their fears to shield their sick brother or sister. These unsung heroes bear the weight of childhood cancer.

The Price of Hope


Treatment is a double-edged sword. Chemotherapy, radiation, surgeries - they 
battle the unseen enemy. But they extract
a toll. Toxicity ravages tiny bodies. Hair
falls like autumn leaves, after eating must
vomiting, a sore mouth and nausea becomes
a constant companion. Parents watch help-
lessly, torn between hope and despair.
Survival comes at a price - a childhood interrupted.


The Inexplicable Relapse

Imagine victory—a child declared cancer-free. But relapse, like a thief in the night, steals hope. Why? Science struggles to understand. Cells mutate, treatment fails, and shadows return. Parents grapple with questions—why my child? Why again? The brutality lies not only in the disease but in its unpredictable twists.

The Call for Awareness

Childhood cancer needs a spotlight. In LMICs, where resources falter, children's lives are lost unseen. We must bridge gaps - diagnosis, access, and affordability. The development of new, less dangerous medicines should be promoted by governments. Everyone, not just the privileged, deserves access to essential medicines Everyone, not just the privileged, deserves access to essential medicines. Childhood cancer data systems must track progress, driving quality care.

Conclusion

Childhood cancer—the silent storm that rages within. We must listen, learn, and act! Let us tear down the veil, honor the unseen heroes, and fight for a world where innocence triumphs over shadows. For every child battling cancer, let our voices rise—a deafening chorus of hope that drowns out childhood cancer.

Learn more

1 who.int    2 cancer.net   3 cancer.org   4 solvingkidscancer.org


Here are some organizations dedicated to raising awareness about childhood cancer:

 

American Childhood Cancer Organization (ACCO)

·       ACCO supports families and children affected by childhood and adolescent cancer.

·       They provide information, advocacy, and community support.

·       ACCO’s mission is to ensure that no child fights cancer alone.

The Andrew McDonough B+ Foundation:

·       This foundation offers financial and emotional support to families of children with cancer.

·       Their goal is to ease the burden for families during challenging times.

Childhood Brain Tumor Foundation:

·       A volunteer-run organization that educates families about childhood brain tumors.

·       They also fund scientific research to improve treatment options.

Childhood Cancer International (CCI)

·       CCI represents 177 parent-led childhood cancer organizations in 90 countries.

·       Their mission is to raise awareness, advocate for better care, and support families globally.

These organizations work tirelessly to improve outcomes for children battling cancer. Their efforts span research, support, and advocacy, ensuring that no child fights this battle alone.

 


Here are some organizations in Thailand that work tirelessly to raise awareness about cancer:

National Cancer Institute of Thailand:

·       This institute plays a crucial role in cancer prevention, research, and treatment.

·       They provide information, conduct awareness campaigns, and offer support to cancer patients and their families.

Bangkok Breast Cancer Support Group:

·       A volunteer-led organization was established in 1999.

·       They provide emotional support, share experiences, and raise awareness about breast cancer.

Chulabhorn Cancer Center:

·       A leading cancer center in Thailand.

·       They focus on research, treatment, and education related to cancer.

Arokhayasala at Kham Pramong Temple:

·       Founded by Buddhist monk Pra Ajarn Paponpat Jiradhammo, who cured himself of cancer.

·       Arokhayasala is Thailand’s first traditional Thai medicine hospital dedicated to treating cancer patients.

Cancer Anywhere:

·       Launched in 2021, this health policy allows cancer patients to receive treatment at any hospital, regardless of their registry.

·       It aims to improve access to timely and quality care for cancer patients.

Cancer Network Foundation / Thai Cancer Society:

·       The foundation, registered on March 26, 2020, advocates for cancer prevention, access to treatment, and quality of life.

·       They organize events where cancer survivors and parents exchange experiences.

·       Through their cancer academy program, they provide knowledge and understanding about cancer management.

 

The organizations mentioned above are real and actively contribute to raising awareness about cancer in Thailand.

 

Learn more

1 who.int   2 cancer.net   3 mysakonnakhon.com   4 eng.nhso.go.th   5 cancerindex.org

Location: Bangkok, Thailand

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